The Missing Billion Initiative, CHAI and partners announce global commitment to action on disability inclusion

On the heels of new research identifying major gaps in disability health data, the Missing Billion Initiative and partners announce a new commitment to action at UNGA 78

September 18, 2023 — The Missing Billion Initiative and its partners today announced a Commitment to Action centered on accelerating disability inclusion in health systems globally during the Clinton Global Initiative (CGI) 2023 Meeting in New York City. The committing partners, include the Missing Billion Initiative, the McKinsey Health Institute (MHI), the Clinton Health Access Initiative (CHAI), the International Disability Alliance, and the London School of Hygiene & Tropical Medicine.

The two-year commitment aims to reduce the staggering 10- to 20-year life expectancy gap people with disabilities face compared to people without disabilities. This involves changing entire national health systems to ensure that people with disabilities can access the health services they need—from prenatal checkups to eye exams to urgent care, and beyond.

To do this, partners will work with global, national, and community stakeholders to design inclusive health systems that serve as case studies for scale in at least six countries. These case studies will help build a global coalition of health stakeholders, mobilize donors to pledge financial support, and cultivate the evidence base to inform action on disability inclusion.

The Commitment to Action comes on the heels of a new report published by the Missing Billion Initiative and MHI exploring major gaps in data about people living with disabilities, who represent 16 percent of the world’s population.

The missing billion: Lack of disability data impedes healthcare equity shines a light on how these gaps prevent healthcare professionals, policy makers, and other stakeholders from understanding lived experiences and present a barrier to achieving global health equity goals. The report offers actionable recommendations on better data collection and usage, including strengthening emergency health records, registries, and leveraging national censuses and household surveys to collect data.

“In a world where 1.3 billion people are living with a disability, inclusive and equitable health services are critical. Yet we know that this is not the case globally, at a foundational level due to missing data about people with disabilities,” said Ahmed Osman, associate partner and McKinsey Health Institute Geographical Leader. “Equity in health is a priority at the McKinsey Health Institute, and we are committed to advancing healthier lives for all. Whether one is operating from a healthcare organization, government, donor, or implementing organization, we all need to work together.”

“We cannot close in on global health equity without clarity on what health challenges people with disabilities face,” said Phyllis Heydt, co-founder of the Missing Billion Initiative. “Data is essential to provide greater clarity and move to action.”

“Creating equitable access to health services for individuals living with disabilities requires collaboration from stakeholders across global health systems,” said Jose Maria Veria, Director of Advocacy of the International Disability Alliance. “By bringing together a coalition of organizations dedicated to advancing inclusive healthcare, and with the strong involvement of organizations of people with disabilities, we are signifying our commitment to a world where every individual can get the healthcare they need and deserve.”

Read more details about the significant health access barriers and poorer health outcomes of people with disabilities in the latest Missing Billion report. Read more about the state of global health data on people with disabilities and where the health community should go from here on the MHI website.

 About the partners

About The Missing Billion Initiative

The Missing Billion Initiative is a catalyst for system change aiming to improve the health of 1.3 billion people with disabilities. It gathers data and evidence, partners with governments and funders to implement change at scale, develops innovative solutions and mobilizes global health actors on disability inclusion.

About the McKinsey Health Institute

The McKinsey Health Institute (MHI) is an enduring, non-profit-generating entity within the firm. MHI believes, over the next decade, humanity could add as much as 45 billion extra years of higher-quality life, which is roughly six years per person on average —and substantially more in some countries and populations. MHI’s mission is to catalyze the actions needed across continents, sectors, and communities to realize this possibility.

About the Clinton Health Access Initiative

The Clinton Health Access Initiative, Inc. (CHAI) is a global health organization committed to saving lives and reducing the burden of disease in low- and middle-income countries to create and sustain high-quality health systems that can succeed without our assistance. For more information, please visit www.clintonhealthaccess.org.

About the International Disability Alliance

IDA is a global alliance of eight global and six regional member organizations representing over 1,100 organizations of persons with disabilities (OPDs)[1] and their families from 182 countries.[2] IDA’s work is primarily focused on promoting the effective and full implementation of CRPD and compliance by governments and the UN System through the active and coordinated involvement of representative OPDs at the national, regional, and international levels. IDA’s work is structured around the pillars of Human Rights, Advocacy, and Capacity Building, which mutually reinforce each other in thematic areas.

About the London School of Hygiene & Tropical Medicine

The London School of Hygiene & Tropical Medicine is a world-leading centre for research and postgraduate education in public and global health.

About the Clinton Global Initiative

Founded by President Bill Clinton in 2005, the Clinton Global Initiative is a community of doers representing a broad cross section of society and dedicated to the idea that we can accomplish more together than we can apart.  Through CGI’s unique model, more than 9,000 organizations have launched more than 3,900 Commitments to Action — new, specific, and measurable projects and programs. Learn more about the Clinton Global Initiative and how you can get involved at www.ClintonGlobal.org.

[1] The CRPD emphasizes the representative role/mandate of organizations of persons with disabilities, distinguishing them from organizations for persons with disabilities. This was further reinforced by the General Comment 7 of the CRPD Committee which states that organizations of persons with disabilities (OPDs) are those that are led, directed and governed by persons with disabilities. A clear majority of their membership are recruited among persons with disabilities themselves. See CRPD General Comment No.7, para 10-14 on definition of OPDs and contrast with civil society organizations

[2] IDA’s membership (members and members’ members) includes 227 OPDs in Africa; 230 in the Americas; 88 in Asia; 390 in Europe; 63 in MENA; and 163 in the Pacific.

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